one year with Everly Joy!
today we are celebrating Everly’s 1st birthday, so it feels like an appropriate time to revisit this forgotten blog! in a year where we have felt so much heaviness in […]
today we are celebrating Everly’s 1st birthday, so it feels like an appropriate time to revisit this forgotten blog! in a year where we have felt so much heaviness in […]
a year ago today, Mikisa had a functional hemispherectomy. words can’t describe the fear i felt on that day as the surgeon cut into our beautiful daughter’s brain and disconnected […]
2014 was a year we will never forget. we experienced some really good times and some really challenging times. when we look back, we are so amazed and thankful for […]
dear Mikisa, 5 days ago you had the most drastic brain surgery imaginable. we were so scared about how things would be when you woke up. we didn’t know what to […]
my sweet and beautiful Miki girl, right now they are “fixing your brain.” we’ve been talking about it for a while, and i know you sense that this is a […]
the past two days we have had appointments in preparation for Mikisa’s surgery next week. last night, as i said goodnight to my sweet girl, i had to promise her […]
in just over a month, on November 19th, Mikisa will have brain surgery. i am still shocked at those words. how can this be happening? i have to remind myself […]
we met with the neurosurgeon this week, and we’ve made some big decisions that i’m still trying to wrap my head around. at this time, we have decided to move […]
last week, we were in the hospital for 4.5 days of testing. Mikisa had an MRI, SSEP, and vEEG. it was emotionally and physically exhausting, but we left with a […]
tomorrow i go in for a two hour appointment with a neuropsychologist. she has completed 4 lengthy testing sessions with Mikisa over the past month, and tomorrow i will hear the […]