we just got back from another 24-hour EEG. the results, while not as great as i had idealistically hoped, were good. Mikisa’s daytime seizure activity is completely gone! the neurologist said he was really happy with how normal her brainwaves looked, although they are still slower because of the stroke. during the night, her seizure activity was down to 30%. that’s a huge improvement from a month ago, when she was at 100% spiking…all night long. we are thankful for this progress and hope that we will see continued growth in her over the next months. it seems the combination of her new seizure meds with more intensive therapy and also the addition of chiropractic care (and lots of prayer) is really having an impact on Mikisa!
i am relieved that this season of EEGs every month is over (for now). the doctor said that unless we see new seizure activity or obvious regression in language and behaviors, we don’t need another EEG for another few years. We will continue having appointments with the neurologist to monitor her progress, but thankfully the EEGs are no longer top priority. i don’t know who’s happier, Mikisa or me. it will be nice to not have to worry about how her EEG looks and just focus on loving our little girl and helping her learn.
oh, and we finally got her name changed legally! it’s been interesting hearing everyone try to say it…i never thought it would be a difficult name. we have people say “Miska” “Mishka” “Miksa” “Mikeeta” “Mekasa” Mi-kiss-a”. *sigh* i never could have come up with all the different pronunciations! oh well. (for those of you that don’t know, it’s pronounced Mikeesa)